Rocket organises a virtual expert panel series each Friday in February in honour of Rare Disease Day.
In honor of Rare Disease Day, Rocket cordially invites you and your colleagues to join us virtually for an expert panel series each Friday in February. These events will gather rare disease experts leading gene therapy
clinical trials, genetic counselors and patient advocates, as they share their perspectives on topics impacting
the community. The series will kick off with a fireside chat with Orphan Drug Act catalyst Abbey Meyers.
To register, please click on the panel titles below and visit our website for more details.
Feb. 5: Abbey Meyers: A Parent’s Quest to Make a Difference in Rare Diseases
Feb. 12: Revealing the Power of Genetic Testing
Feb. 19: Beyond ClinicalTrials.gov – The Clinician’s Perspective in a Rare Disease Study
Feb. 26: How to Go from Caring for 1 to Caring for a Community
Our first Rare Disease Day Event is right around the corner. Since many of us at home with our families we wanted to find a way to get your kids, nieces, nephews involved! We are looking for submissions of drawings / crafts that symbolize Rare Disease Day (zebras, colorful drawings, handprints—let their imagination run free). See below an example from a young artist who recently learned from her mom (Latika) the importance of zebras when thinking about rare disease. We would like to display these drawings / crafts in our virtual sessions. Take a picture and send your submission to us to have your children’s work featured!